Category: Parenting

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Time.

“Time is a created thing. To say ‘I don’t have time,’ is to say, ‘I don’t want to.’” — Lao Tzu

You know that feeling when someone reaches out to you that you haven’t spoken to in years? Especially when that someone was somebody really important in your life at one point in time. It makes you realize how many lives one can live within a single lifetime! The saying is that ‘life is short’ but in the moment it sure doesn’t feel like it. Counting the years add up quickly and it’s incredible how something can seem so familiar yet a distant memory at the same time. How accessing memories from the past can make you feel as though you’re right back there, living it all over again in real time. I’ve often joked that it’s a blessing and a curse to be able to recount and recall all that I do. Remembering certain dates, both good and bad. Wishing that it were easier for you to forget certain things, only to one day realize that a day came and went and you didn’t even think about its significance, once. Time is nothing but a relative term. My boss believes that it’s our most finite resource, and she’s not wrong, but it’s also just a relative concept, is it not? I don’t mean to get all philosophical on ya but seriously. Have you ever thought about it?  

It has been 11 months since my last entry and I find that just as hard to believe as the fact I am approaching the 2 year mark of employment with The Sisters Enchanted! Wanna know something crazy? I don’t remember my exact start date nor end date with Borders – but I know that it was just around this time mark; making TSE the LONGEST consecutive job I have ever held! WHAT?! Well, except motherhood, of course. Wild.

So what the hell has been going on for the last year? F if I know. Ha, ha! I mean, work was crazy busy the second half of 2023 and a good chunk into 2024. But sitting here reflecting I realize that as 2023 came to an end I was thrown POTS flair and battled extreme fatigue and all that comes with medication dysregulation. Not to mention that I had developed some new symptoms that we’re still trying to get sorted out. Instead of just passing out upon positional changes, I started passing out just arching or twisting my back ever so slightly. And having costochondritis with slipping ribs movement to simply breath is kind of necessary. I could literally be lying in bed stretching and the lights would go out. I could be working and if someone walked into my office, if I turned to look at them just right, down I went. We have absolutely no idea what could be the reasoning behind this new cause for syncope, but I am meeting with a new local Electrophysiologist later this month so we’ll see what he has to say. The only thing that has come up between my most recent echocardiogram and holter monitor is some regurgitation from both my Mitral and Tricuspid valves. So, I guess it’s fair to say I’ve just been exhausted and finding time, let alone motivation to write, just hasn’t been there.

However, the writing bug has bitten me recently so here I am, with an update.

You ready?…

>> I have decided to turn my writing into a book after all! <<

::Cue digital confetti::

I am not entirely sure when I decided to turn it into a book and obviously it’s going to take quite a while but slowly it’s getting there. I have already taken most of my entries and converted them and as I write more I will update the blog. There is still so much to say but instead of writing up something new when the inspiration fired, I got a head start on prepping the book. Do I think anything will come out of the book? No, not really; I know that I’ll have a few sales as it’ll likely be self published but the point is the follow through. Even if it is self published, I can still call myself a published author whenever that day comes. A goal I set out years ago and one I [WILL] see to the end! ::bowsdown::

SO – what else has been going on? Well, as I piece together and edit what I have for the book, I was reminded of something else that has triggered significant mental fatigue over the last year that has likely added to my lack of motivation to write. That being Leighton’s hormones triggering more psychological episodes and the fight to try and get him help! There are times where he is literally begging for help. He needs a psychiatrist but I cannot get anyone to call me back. No one responds to my emails and even with a primary care doctor trying to assist in my efforts… nothing! It’s maddening! Ever since Covid, finding mental health help has been nothing but a sick joke! Those comments about “not wanting to live” have turned into very real concerns about self harm. His doctor has warned him that he needs to choose his words wisely because we are obligated to take him to the hospital if he continues to say some of the things he says. I think that scared him enough because he is definitely making an effort to try to communicate better, but he himself is still scared that when he’s in a fit, and not thinking, that he will do something dangerous, not being able to logically think about the repercussions. He is concerned about harming himself because of how dark his mind gets. I am just so thankful that the lines of communication are still open and something he has found that helps is sketching out his feelings. Instead of writing a journal, which he did start and really appreciated being able to write whatever he wanted without fear of judgment or punishment, he draws symbols and whatnot to express what is going on for him. Can I decipher even half of it? Not at all, but I’m willing to listen if he wants to explain. There was one day while writing that you could see the whole process from his irrational thoughts, to working his way through them and then realizing where he was in the wrong, what could have been done differently and why he thinks things ended up the way that they did. Proud Mama doesn’t even begin to define how I felt when he shared that entry with me; even if there was an entire paragraph of seeming  just F-bombs.

Parenting is hard. So hard. On one hand we know he is very good at manipulation but the alternative of not taking his words seriously is not something I’m willing to play Russian roulette with. So alas, we’re back to trying our damndest not to upset him but boy do hormones take their toll!

And Kellan? Kel has just been an a-hole. He argues over everything. Complains over everything! Igor says that school ruined him and while I tend to agree, we can’t forget he’s always been my little neanderthal and a total stinker. 

In April I had to head back to the East coast for work and since I can’t travel alone, we decided to make it a family affair. It was the boys’ first time flying and they did really well! AND I didn’t pass out during either descent!! I found these new ear plugs that help with regulating air pressure and they were a literal game changer! Not only did I not pass out, I was also not curled over in the fetal position crying from pain. I have never been able to fly, ever, without my ears bringing me to tears! I have so much scar tissue in my eardrums that they can’t handle the pressure changes. I really wonder if I didn’t pass out because I wasn’t in pain, but also because my ear pressure was regulated? If that’s the case, then ya girl may be able to start traveling ALONE again! Oh wouldn’t that be the dream?! However, now that I know I can request a wheelchair both ways, that’s a game changer too! Who knows, maybe next year I won’t need Igor to assist me on my work trip!

Last year for work we went to Mystic, Connecticut and this year Salem, Mass! Witches loose in Salem, oh what fun! I had to work Mon-Wed so Igor, the boys and I flew out on a Thursday to get some family vacation time in. You’d think we’d have learned by now that a family vacation is not a vacation, but rather a family trip. There is nothing “vacation like” about traveling with kids. Leighton was a dream almost the entire time, a shock and blessing twisted together. Kellan? Total a-hole. Ha. He whined and complained the entire time, nothing was good enough even if he got what he wanted. It was really difficult for me but I especially felt for Igor as he was stuck with the kids without me Mon-Wed. Friday we explored downtown Boston and oh my heart was I in love. Leighton is my sensitive buddy, he always wants to be with me when he’s exploring new places as my “energy calms him”. I didn’t realize how much that means to me until we were in Boston and he chose his dad! Rude, right? My heart has always been drawn to New England and he said that my energy was too comfortable there, like I was meant to be there or was in a previous life; so he was with Dad because it’s like they were experiencing it together. Okay, maybe not rude – that is rather sweet. He even held his hand walking down the street! ::dawww::

I thought Seattle was my favorite big City but Boston is a true contender! There’s nothing quite like standing IN PAUL REVERE’s house and realizing that it’s THE anniversary of the start of the revolutionary war!! It was the coolest and craziest thing to experience. We walked all of Freedom Trail (& yes, John Hancock’s gravestone is phallic & no, the irony is not lost). L had his favorite donut, Boston Cream – in Boston and he stunned a group of college kids over his awareness and understanding of climate change. He was given an Eco-Warrior pin and his response after walking away: “that was so fun!” Ha, ha. We also had Regina’s World Famous Pizza and explored the U.S.S. Constitution. Aside from Kellan complaining alllll day and me passing out twice on the subway (& having to sit on the floor, partly blocking a door, because no one would give up their seat) it was a fantastic day!! 

Day 3 we explored Salem. Day 4 we drove to New Hampshire & Maine (Leighton has officially made it to 13 states and Kellan, 9!) and visited Fort McCleary; then headed back to Salem for an adventure at World of Wizardry with my boss and her family – the kids became instant friends – before heading to Team TSE’s rental house in Manchester by The Sea. It was a super old, creepy home with a lot of energy! By bedtime Leighton was so uncomfortable he ended up getting physically sick and slept almost the entire next day… anxiety hangover’s are rough, poor kid! Igor ended up renting a hotel for him and the boys to sleep at for the remaining 4 nights and I stayed behind since I was there for work. Day 6 Team TSE had an in person event, so our husbands took the kids for a day at the park. The house’s energy made itself known more than ever that day and I myself got physically sick after exploring the basement. I have never experienced anything like it before and I’m thankful I had my black tourmaline on me! Day 7 Team TSE had an all day photoshoot; which ended in us running into the ocean while it was 50 degrees outside. And I gotta say, it’s super weird seeing my own face on the internet, out in the wild, on real ads and whatnot. I’m still unsure how to feel about it. Kellan introduced the other kids to chess and even almost beat a co-worker’s husband (a former avid player)! Day 8 we went back to Salem before heading to Marblehead for the best lobster roll of our lives!  It was a jam packed, busy and eventful week! While I love that the kids finally got to meet after 2 years, taking a work trip with kids is not something I’d like to do again for a long time! Annnd of course we received our first truancy letter upon getting home for school absences, dated before this trip… cool.

Annnyway. I just had the itch to write a bit so I figured I’d give an update.

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Hello, New Me! pt. 2

“It’s all about new me.” – Lity Munshi

I know I left you hanging and I do apologize; but if I hadn’t broken these up that blog entry would have been doubled the size of any other entry, and from what my husband has said, entries aren’t supposed to be >that< long. Though this is still long AF… ::shrugsshoulders::

So what were my 3 intentions that I wanted to change while I worked through Holistic Witchery?

Initially I wanted to change the way that I think about myself and the way I feel about how I handle life with 2E [Twice Exceptional] children, especially Leighton being neurodivergent. However, as I got thinking and working, I realized it’s not about -how- I think about myself but -why- I feel the way I do. Which also made me realize that it’s more that I needed to change the way I think in terms of Leighton. And then for my surroundings was an easy/obvious one after the chaos of Covid. I need to get my home back in order, I needed to get organized in every way possible!! But the question was, what did they all have in common that I could use as one intention to focus on?

The answer: Balance!!

You see, I’ve never felt comfortable doing things by myself. Going to a store without another adult/peer, I felt that I didn’t belong. My senses were on high alert and I felt disoriented. Even being out with my children just didn’t feel right. I would get anxious even just being in my front yard alone, which left me inside, anti-social and my landscaping neglected. Plenty of neighbors are outside with their kids or doing yardwork and I just couldn’t with them there, without someone else with me. Of course these are not rational feelings, which is why I figured out it’s not a matter of thinking but a matter of why. Why do I feel this way? What causes me to feel so drastically different doing something alone vs. with another adult? I thought maybe it was a confidence thing, like how I hate talking on the phone because of my processing disorder. I lose my train of thought, can’t get the right words out and sound like a babbling bimbo. The deep rooted shadow of “not being good enough” seemed to fit. Although, I have come to see that this is more of a problem with my generation as a whole. We grew up in the era of online chatting and texting for communication. The anxiety is there for almost everyone in one way or another, therefore, lack of confidence is too surface level to be the [real] shadow.

No, the real issue at bay, which in a way could be lack of confidence I suppose, is the lack of {believing} in myself. <- I know that sounds rather surface level as well, but here’s where the deep “AH HA” comes in. As I explained in [06.HS/Diagnosis], I was really sick as a teenager. I couldn’t do things on my own, whether it was because it was dangerous or I simply just couldn’t physically. I woke up too many times in a bathtub filled with cold water when I was just trying to shower. I didn’t know when I was going to end up face first on the ground or hitting my head hard enough for a concussion from dropping. It. Wasn’t. Safe. Over the years my health has been up and down, especially through hormonal transitions from pregnancies, nursing, weaning, etc. With all of my deep diving through Holistic Witchery, I realized that somewhere in my subconscious I have been stuck between being a healthy, capable adult and the bedridden teenager I once was. ::BAM::mindblown:: I have been “sick” most of my life but after getting a diagnosis 17 years ago, I’ve done enough research and am in tune enough with my body, that I know when I’m [really] sick vs. just not pushing hard enough. <- and I HATE to say it that way but it’s true. However, it’s not about fear of pushing myself too hard but rather… at all in some cases.

I came to the conclusion that I have been using past experiences as a crutch. The fear of something happening while out on my own, is my lack of {belief} in myself. The lack of trusting that I know myself well enough by now to know if I really will be okay. With this, also comes my lack of driving. Yes, there are absolutely days and stretches of time when I cannot get behind the wheel. It wouldn’t be safe for me or anyone else. But that lack of belief in myself rings true here, with the help of anxiety and a side of PTSD. After the car accident [12. Life Detour] I was left with PTSD, I mean who wouldn’t after experiencing what I went through? Although, I was able to overcome it and drive regularly again, until I wasn’t. When I hit longer stretches of being sick, I know I’m not well enough to drive. However, I have also concluded that I use being sick as a crutch to also allow anxiety and deep rooted PTSD to keep me from going out and/or driving. This is where the lack of pushing myself hard enough and/or at all comes into play. There are days that may be [iffy] as to whether or not I should drive, but those ‘iffy’ days are a wide spectrum of gray, and more so lean towards the ability to vs. ability not to. Deep down I probably already knew this, but a shadow is a shadow and buried deep for a reason!

Since this revelation? I have driven myself to meet up with Mom#2 [07. Ode to My Mentors] for tea, I have taken the kids and myself to my dad’s pool, taken both boys to Menards by myself, taken Leighton to a doctor’s appointment, myself to a doctor’s appointment and a few curbside pickups. I’m sure there are probably a few other smaller things, like to my mom’s, but these alone are huge! Prior to this summer, I could count on my hands the number of times I drove from the Fall/Winter of 2017 to this Summer… it’s fkin sad. Don’t get me wrong, there were >definitely< periods of [long] stretches where I really was -too- sick, but looking back now, I can see where there were days I likely could have driven but fear got in the way. Now, did it feel weird AF driving and being out? Absolutely! Did I still feel like I didn’t belong and disoriented while at Menards with the kids? Absolutely! And I know that it will for a long while, if not forever, honestly. But that’s okay! I found the {why}, therefore I know that the only thing holding me back is myself – and I don’t want to anymore!! I KNOW that I AM [capable]! I am finding the balance between being that sick teenager and the healthy, capable adult.

Now for changing the way I think about how I deal with Leighton. If that even makes sense? As I’ve already explained in [Twice Exceptional], having 2E children is no walk in the park, especially when they’re neurodivergent. My mother has always praised me for how I deal with/handle Leighton and his “episodes”. I try my best but I won’t lie that it’s hard AF and beyond exhausting. It has challenged my marriage and my mental health. As a mother it breaks my heart to even say this, but our relationship seemed [forced] out of obligation at times. After nearly 10 years I found myself just feeling more and more negative towards him, even though I knew it wasn’t his fault. Yes, he may be a master manipulator, but at the end of the day he is still neurodivergent.

As I worked through Holistic Witchery I knew I needed to work on myself in order to change my mindset around him. He is very science minded, black and white, and if he can’t see it to prove and/or explain it, he doesn’t believe it. We already know Igor [14. Forever & Always] doesn’t believe in -any- of this, even though the science IS there. He just doesn’t understand it. Ha ha. That said, let’s talk about crystals for a moment. Science has proven that -everything- has different vibrational frequencies, right? And that energy can be manipulated based on those different frequencies. So wouldn’t it just be a scientific fact that an object radiating a certain level of energy could manipulate your own frequencies? And with that said, wouldn’t it make sense that different crystals, with their own different frequencies, could affect one self? Sounds simple enough to me… Do I believe that crystals can cure things over medical intervention? No. Do I believe that crystals can change your emotions or mindset, put up a ‘shield’ to protect your own energy from taking on others around you, or aid in the healing of certain ailments? Yes. Is it possible that it is just a placebo effect? Absolutely. Is there anything wrong with that if it helps someone become the best version of themself? Absolutely not!

Being the ever so inquisitive child that he is, obviously he wanted to know more about what I was learning and how things worked. About two years ago he was interested in tarot but Igor and I agreed that I’d take a step back from teaching him about it, as he wasn’t fully grasping the psychology behind it. He saw it as cut and dry and took everything at face value. Now that he’s older he’s understanding things differently. In fact Igor joked that I broke our child because he was able to explain how people born on the same day, at the same location and time could have different astrological birth charts, because they’re not in the exact same location in terms of degrees. I laughed so hard because that was [not] something I had taught him; I actually hadn’t spoken to him about astrology at all before that! He then went on to discuss how there are actually 13 Zodiacs and a whole bunch of other space knowledge. <- In case you missed it, he’s been obsessed with all things -space- for over 5 years, when he decided he wanted to be an actual rocket engineer. His dream is to help put man on Mars and my goodness I’m sure he will!

Anyway, as I learned more about honing in on my intuition, Leighton started to notice and understand that he too is [sensitive] and really connected. Which has been hard for him because he doesn’t understand how he just >knows< things. He is stuck between logic and feeling and still trying to figure out what it is that he believes himself. Which is perfectly fine, he knows both mine and his father’s views, and all we can do is explain why we believe what we do and let him figure it out for himself. Suficeive to say that his clairsentience and claircognizance are strengthening and it’s difficult to navigate when both parents aren’t on board. He absolutely hates whenever he hears about, reads or sees someone getting hurt. He could never explain why until this summer… As it turns out, he physically >feels< the pain that someone else is enduring, even just fictional characters in a book or movie. Talk about taking emath to the next level! He has also described things that he sees such as auras and colored symbols. Being the science guy that he is, he didn’t believe the thought behind crystals either. Of course, it doesn’t help when his dad bashes it. BUT, I knew he was struggling. The more my “powers” unlocked, his did too. Even Kellan has been bringing things up out of the blue lately that are spot on without any way of knowing. I think it’s safe to say that the energy within our household is definitely changing.

One day the light bulb inside my head went off. I realized that it wasn’t the way I think about him or handling his episodes, it was about helping him take control for himself. Through therapy and everything in the book, nothing helped in terms of coping mechanisms. So, I decided to try a different approach. For those who don’t know crystals, black tourmaline is believed to be one of the best protection stones. It helps shield your energy from negative getting in or positive getting out. If that’s too ::woo woo:: for you, think of it in terms of vibrational frequencies. It helps keep you neutral without being affected. I bought a couple different tumbled stones and told him to feel them, really truly pay attention to his mind, body and soul. He could take one and walk away, try a different one. Just see if he notices anything different among them. <- That was the day Leighton became a believer. He couldn’t get over how dark and heavy one stone made him feel or how light and airy the other did. He felt a sense of calm he’d never experienced before and his whole mindset changed. In fact, he had been afraid of “witches” ever since his second grade teacher read The Witches during class. Like, legit nightmares for years. When I started Holistic Witchery and some pathways in Enchanted Journey, I learned more historical backgrounds and tried educating him. That was when I started saying that I was a witch – trying to show him that how they’re portrayed in books and movies is simply false narratives. My doing so was more to help ease his fear from the book but it completely changed his mind about everything he thought in terms of the subject.

This summer we took a family trip to Traverse City with my dad and Brian. Before leaving for the trip I mentioned that there was a crystal store that we’d go to where he could pick out his own crystals. Something that he feels drawn to, to keep him safe. While the black tourmaline made him feel better, everyone has different frequencies remember? Therefore, different stones work differently for different people. To my surprise there was a new “witchy” store that had just opened a few months prior. I was SO excited to pick up supplies but also for Leighton to experience it. Igor and Kellan were bored as can be and left us there, but Leighton? Leighton lit up like a Christmas tree! You could just see the spark within him. He did the same thing with a few tumbled stones there and ended up picking out snowflake obsidian (similar to black tourmaline while also bringing balance between the mind, body and spirit.) and lapis lazuli, which is also a protective stone but also brings about confidence with self awareness and expression, and deep inner peace. After we left with some awesome goodies I asked him what he thought. He LOVED it and felt like he [belonged]!! He can’t wait to visit another metaphysical store and has already asked a few times when we’d be going. Oh my sweet child, you are my baby boy! Ha, ha. Things between us started changing and getting good early in the program but after visiting that store, everything changed for us. We now have this connection that isn’t forced and I genuinely want to spend time with him; and I even look forward to snuggling at night, which was something I used to dread. Yeah, I’d say this intention for change is checked off.

Next we have changing my surroundings. Just one look around the house and it was super obvious what needed to be done. EveRythINg! Though it wasn’t just my house, it was my life in general. Due to being sick for so long prior to Covid, and then having the kids home for a year and a half, everything got turned upside down. As I’m sure it did with most everyone. I used to have a daily/monthly/yearly cleaning schedule but all of that went out the window. It was too hard to keep up with, with everyone home and no one helping. Plus my major PMDD spiral [Awakening] at the end of summer 2020. Life had just been a mess. Which is exactly why I started this blog and joined TSE: I didn’t want others to feel alone, but at the same time, I realized through the community at TSE, that I myself am not alone. I’m telling ya, the community alone is worth it, haha.

But seriously. I needed organization in my life more than ever! I made myself a daily schedule that has a timeline for myself to get certain things done, an area for daily gratitude, an affirmation, and then extra notes or things to remember to do. I also made myself a new daily/monthly/yearly cleaning schedule that would better fit life these days. I made both of them pretty, and colorful, and they bring me such joy when I see them. Heck, I even laminated them and bought wet erase markers. Yup, getting my surroundings balanced was underway, but I was just getting started!

Igor and I had always talked about things we wanted to get done around the house, updating wise, but after 9 years nothing was getting done. Literally. Landscaping did but we didn’t have a choice. <- I kid you not, my house is a hot spot for trees being taken out by mother nature. Which is ironic as we ourselves have removed 9 from the front yard and 3 in the back. Mother nature took it upon herself to strike 2 trees right next to each other with lighting, a few years apart. Lightning doesn’t strike the same place twice, huh? I have proof otherwise. Unless you’re going to be like Leighton and argue for the sake of trying to prove me wrong, because it wasn’t the “exact spot”. ::rolleyes:: But seriously, in the back 3 full trees and 2 separate half trees have been knocked down. Then the city removed one in front due to disease and just this past week half of another tree was hit by lightning in front. WTF is going on? Michigan isn’t supposed to have this crazy weather!! Oh wait, hi global warming. ::shakeshead::

Anyway, sorry, I didn’t mean to go on a tangent about trees and the weather. Just needless to say landscaping was a necessity. But you know, homeownership is for the birds. And yes, I am about to go on another tangent because this is my reality. You have a problem, try to fix said problem, the problem still exists. Then a new problem appears which ultimately leads to needing remodeling work done, which leads to discovering [new] problems, which leads to more remodeling and so forth. It’s a stupid cycle! If you don’t own a home, don’t do it. Just don’t. You’ll thank me one day…

Okay, so the second tangent goes with my changing the surroundings to a point. Like I said, we had plans to update our house but just never did, cause you know – money. The one thing that I wanted done first was new flooring in the kitchen and family room, and Igor wanted new kitchen countertops. Which, I don’t blame him, they really were horrible! Our master bath’s are also horrible but I am ok with the cheap fix with contact paper for now. Err.. well, ever, because priorities have certainly changed as of this summer. ANYwho. So, last fall we noticed our kitchen cabinets were starting to fall apart. We thought maybe some was due to water damage since we got a new roof in 2019 due to leaking. Turns out it wasn’t damaged but rather just junk. Our cabinets literally started to crumble. In fact, as Igor was removing one it all came apart and the shelves slammed down onto his head. ::sadfaces:: In March of this year we decided to go with a new Ikea kitchen. I designed it, we met with a member at the store, had their guy come measure but we sat on it. Igor couldn’t decide between a wall oven with a cooktop or a new range all together. I personally would have been fine with the range but whatevs. So for a few more months we played around with designs until I had enough.

Since Igor had to work my mom took me to Ikea to meet with a new kitchen specialist, to assure that our design was going to work and finalize everything. If you hadn’t already figured out that I am a person who second guesses everything and hates to make decisions, then I’d say you’re not actually reading my blog posts. But do you know what my new found confidence from TSE allowed me to do? I bought the damn cabinets!! Igor was in a meeting and I couldn’t get a hold of him and I just did it. > I < made the decision! Nevermind the fact that as soon as I sat in the car, I had to stick my head out of the door to throw up, right there in the parking lot. ::hidesInshame:: I have never had that happen before, ever! I didn’t even realize that my nerves were so heightened but it makes sense. My mom said that she had never seen me so composed, unanxious – I was like a completely different person going through that purchasing process. I’m sure you know what I mean when your parents tell you they’re proud of you, it’s just like “yeah, okay, thanks.” <- or maybe you don’t. I am sorry to assume; I know that I am very fortunate to have such a supportive family and that not everyone hears their parents tell them they’re proud of them. I think [my] parents have told my husband how proud of him they are more than his own ever have. Please know that I don’t take those words for granted, all I’m saying is, that day I {really} -felt- her words!!

When we went to Ikea in March they told us it could take 12-18 weeks to get all of our cabinets delivered/in stock. And when we met with countertop places they said it would be 4-8 weeks -after- the countertops were installed. WHaa??? I think that’s why we sat on it. It just seemed like the process would take forever and we’d be living in a nightmare. Little did I know, after ordering the cabinets the bulk of the order was able to be delivered less than 2 weeks later. Maybe that added to my getting sick in the parking lot, because it just got real, real fast! So they were delivered and I went to town building the bases of them. Out of 30 cabinets, I had all but maybe 6 completed within a week and a half. I was ready to get the ball roooolling. Problem was, we had no idea who would do the actual installing. We hadn’t found our countertops or flooring either. Hello stress overload, not so nice to meet you again.

My father in law is the kind of guy who [knows a guy] for everything. Being in that Ukrainian/Russian speaking network has its perks… to a point. Both of his guys said they couldn’t do the full projects until the Fall. So, I also went to town on disassembling the kitchen to help speed things up and hopefully make it cheaper for when we hired someone else. Buuuut my FIL wasn’t having it and convinced one of his guys that it wouldn’t be that big of a project, just come in and hang the cabinets. OMG did I feel terrible for him, he was so manipulated and I had no idea. My FIL also convinced his other guy to send one of his employees to do the flooring. What should have been a 2 day project turned into a 5 day project and a second guy was brought in for days 3-5. ::oyy:: This is where the point of why you shouldn’t be a homeowner comes into play. Upon removal of the carpet in the family room, we discovered that our door to the deck, one we NEVER use, was rotting on the inside from water damage. We knew the outside was an issue and that getting new windows was the only option to fix it. Which we planned to do, but again, money.,, one income household of 4 and a cat. So, we needed to remove the subfloor, bleach the heck out of everything structural to remove any built up mildew, and spray a ton of anti-mold stuff or something like that. All I know is the family room was tapped off with plastic for almost 24 hours. Now the pressure is back on to try to find someone for windows asap. We met with 3 companies last year but again, sat on it. And now with inflation it’s a nightmare! Remember when I said it would take 4-6 weeks for countertops? Yeah, I dreaded that process most of all! BUT in actuality, the whole process took less than two weeks, thankfully!! It took 8 FULL days broken up over the span of 4 weeks to get all of our cabinets installed, plus lighting and electrical replaced. And that’s just bases installed. Igor and I have been spending most of our free time building all of the drawers, installing them, installing doors, and adding hardware for like 2 weeks now and it’s still not done! So. Many. Drawers… Not to mention they messed up and sent us things we don’t need and left out some things we do. Cool.

::Breath::

I honestly have no idea when the kitchen will actually get painted, backsplash installed, or the decorative stips on the cabinets will be installed, but it’s getting there. I am SO excited to start the organizing process of the new drawers and everything! I got plastic bins and containers so I can ditch the boxes. We had to get all new cookware for the new induction cooktop, that I chose [purple] to match what the kitchen -will- be! Yes, I will have a purplish kitchen, and yes am I excited. Ha, ha. <- So alas, I legit changed my surroundings in the form of designing a kitchen that’ll better fit our needs, and allow me to keep things better organized.

I really am in such an amazing place, mindset wise! I am confident. I am capable. I am balanced. I am courageous. I am not afraid of failing, as it’s just lessons learned. I am not allowing my comfort zone to hold me hostage. I am thriving. AND I am [employed]! YES, yes you did read that correctly!!

Remember the last post where I mentioned that I reached out to -The Sisters Enchanted- and asked for a job flat outright? About that… as I’ve already mentioned, I went into this with a goal in mind: to work on myself and figure out a way to make money. At one point earlier this summer, I thought that maybe I’d get more into tie dying and sell some work, which, I guess is still a possibility. The kitchen remodel kind of took over my whole summer and so many plans went out the window. But, that is okay!! My heart is with what TSE has to offer and in just 4 months, they must have seen it as well! I {legit} worked my >own magic< and manifested a job for myself!! WHAT!? Yeah, that scared woman in limbo is no more. It has only been a week since I started as an independent contractor, working in Customer Service and Student Support with a little Operations on the side. AND I COULDN’T LOVE IT MORE!! I am just so happy to be a part of the vision that Sara Walka created! I have also been entrusted as the group “Mom” for one of their smaller, most intimate groups. It is my job to keep them engaged and encouraged, with all the love, light and support I can give! I have found my purpose! It’s still so surreal considering it’s been almost 11 years since I stopped working at the urgent care, and have been a SAHM ever since! Nothing is coincidence, it was Taurus’ New Moon where I set my financial intentions, and by the end of Taurus’ Full Moon cycle, I will have completed the ‘90’ day trial that I was initially set up with. But the funny thing is, after only one week, they’re all already talking about long term plans and using “when” instead of “if”. Yeah, I think this is going to work well for us all! <3

And on that note: If you are interested in checking out what TSE is about and how they can help you, help yourself, to become the best version of yourself that you can be – they/we? (OMG, it is we!) are hosting a 5 day workshop called, Magic Week, where you’ll walk away knowing your Expansion Archetype, with a sense of how to manifest and live a magical life based on your individual result. It all starts October 7th and if you’re interested, or would even like to just read more about it, you can do so here: The Sisters Enchanted’s Magic Week workshop. 

I am telling you, it is never too late and AlwAys worth it, to invest in yourself!!! And no, I promise you this blog hasn’t just become an add for TSE and I wont be throwing promotions at you left and right. I just really believe in what they’re all about! ::nodshead::
Love, light and hugs to all!

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21. Miracle Baby

“I was given such a great gift. It’s a miracle that never stops amazing me and reminding me to give thanks, every day.”
– Jake owen

With my {miracle baby} turning > s i x < less than a week ago, I can’t help but reflect on how he came to be. Though, if I’m being honest, both of my children are miracle babies. And no, I don’t mean in the whole ‘all babies are God’s miracles” way. I mean, it’s legitimately impressive that they’re here without [complication]!

See, we didn’t know it at the time, but when Igor went for his vasectomy we discovered he only had -one- of his vas deferens. A missing vas is usually associated with renal agenesis (the absence of one or both kidneys) / abnormalities and / or genetic mutations. The urologist said that he had never heard of it otherwise. So, Igor went off to get an ultrasound only to discover that he, too, is a zebra himself! <3

For those not part of the {chronic illness communities}, in medicine, the term “zebra” is used in reference to a rare disease or condition. Doctors are taught to assume that the simplest explanation is usually correct, to expect common conditions. The phrase taught to medical students throughout their training is, “When you hear the sound of hooves, think horses, not zebras.” However, many medical professionals seem to forget that “zebras” >DO< exist, so getting a diagnosis and treatment can be more difficult for sufferers of rare conditions, such as myself!! There is {no} explanation for why Igor only had one of his vas deferens, and seeing as the urologist was stumped himself, I declare my hubby a “zebra”, even if only an honorary one.

That said, the fact we didn’t end up with fertility treatments is the first miracle itself! I even got pregnant with Leighton on our first try. Our good friend Matt [Friendships pt. 2] likes to joke that Igor has -supersperm- as a result of Chernobyl. <- Which, may be in poor taste given that Chernobyl is considered the worst nuclear disaster in history… buuuut is it not {also} possible he may be right? ::joking;kindof:: Having Ehlers-Danlos Syndrome [06. HS/Diagnosis], I was at risk for a variety of complications, from not being able to maintain pregnancy or delivering prematurely, to hemorrhaging, especially due to my platelet disorder: Delta Granule Storage Pool Deficiency. According to St. Jude Children’s Research Hospital, DGSPD “is caused by a lack of dense granules and the chemicals normally stored inside them. Without these chemicals, platelets are not activated properly and the injured blood vessel does not constrict to help stop bleeding.” <- basically meaning, I’m a bleeder. I have to be honest and admit that while I knew about EDS {shout out to May being EDS awareness month!}, I didn’t truly understand it when it came to pregnancy, at the time I was pregnant with Leighton. We were concerned about premature labor but my obgyn was much more concerned about my bleeding and the potential need for a hysterectomy due to said bleeding.

As I mentioned in [Twice Exceptional], I had Leighton at 35 weeks+5 days. At 33w3d I was sent for a stress test and discovered I was in preterm labor. I guess I’m so used to pain that I didn’t even realize these were [decent] contractions and not just Braxton Hicks. After a few hours they decided to send me home but to keep an eye on my blood pressure and if contractions started up again to go back. In less than 24 hours I was back in and admitted for the night. We already knew that I was going to be having a c-section under general anesthesia because of my doctors’ fears over bleeding. They didn’t want to give me a spinal and cause more harm, only to have to put me under should there be an issue. The morning of the day he was born, my obgyn was concerned that I was going to end up in an emergency situation. She didn’t want to send me home only for me to come back to a busy ward without platelets on hand. She believed based on how I was progressing that I wouldn’t make it a week, and felt it was the safest, smartest option to deliver him that day, while there were two doctors to oversee it, she would be there (as it was her hospital day), and being morning they had fresh platelets on hand and could reserve them for me. That quickly became the scariest day of my life, up to that point! Like I said, we didn’t know enough back then but you better believe I did my research the second time around, because having a child under general anesthesia, not knowing if I was going to wake up with or without a uterus – or at all, miss the first cry, my husband not being allowed in the room, and so forth, >definitely< lead to birth trauma!! I felt so disconnected from Leighton, and honestly I still do. I don’t know if it’s from the trauma or his neurodivergence. I just know that I love him fiercely, but our bond is nothing like that of which Kellan and I have. Over the years there have been times it felt fake and forced and it breaks my heart to even admit it, but here I am… Telling my truth. The next miracle: being born at 35+5, at 6lbs 11oz – baby boy [never] spent -any- time in the NICU (which is good because he would have been transferred downtown to Detroit Children’s Hospital) and went home with me when I was released!!

Having a 2E child is challenging beyond words! With everything that we went through those first 3 years, we honestly didn’t know if we’d have a second child. We had always talked about having 2 and if they were both boys, we’d adopt a girl. Only in a “perfect” world, right? I shake my head at our naive young selves. It took until hearing the words, “you’re not ovulating” and “you may not be able to get pregnant again”, to realize how badly we actually wanted a second. Knowing that choice was essentially [possibly] taken from me, cut me. Deep.

Huh, just right now I realized, I think that I need to backtrack on my comment about not needing fertility treatment. My [naive] understanding of treatments was always so much more in-depth than just taking medication for ovulation induction (OI). After thinking about the fact that I >did< use oral medication to try and “re-boot” things, I decided to see what actually was considered ‘fertility treatment’. Lo and behold, OI is infact one of the first methods! Wow. You learn something new every day, and I’ll [never] stop learning anything I can. Knowledge is power, my friends! <- Which is why my 9 year old son knows about what is going on with the Supreme Court, at this moment in time. When he found out, his first reaction was to ask, “but what about if the mother’s life is in danger?” Oh my heart, sweet boy. I’m not going to go on a pro-whatever- tangent, I just think it’s incredible while also very sad, that this {child} understands it’s >not< a black and white situation – and he is very much a black and white type of person!

I did two “cycles” and viola, I started ovulating again. Seven months later, I was never happier to see two pink lines! From about 6-8 weeks I had to have regular blood work due to what is medically coded as a “threatened abortion.” <- Because that’s always fun to see on paper when you desperately want that child. And just so we’re clear and there is no misunderstanding, a threatened abortion means :possible miscarriage:. Also during those weeks, I had to use vaginal suppositories daily. I share this because 1) this is my truth and 2) [awareness] as I had -never- heard of anything like it before. I had to get them from a special compound pharmacy, as well. The whole point of my blog is to help others, right? There should be no shame in discussing women’s reproductive health; so ::sorrynotsorry:: if you found that uncomfortable.

It was very evident from the start that I needed to see a [high-risk] ob/gyn, again, only this time my doctor recommended that I head to UofM, completely out of her “network”. Hell I wasn’t going to argue, you want the best of the best, right? Man am I grateful I did!! See, it was at UofM where I discovered that even with my bleeding disorder, hematology cleared me for a VBAC (vaginal birth after cesarean), shall my other doctors agree! Missing Leighton’s birth caused a lot of trauma and I wanted more than anything to have a natural birth! More. Than. Anything! Having an epidural was more of a risk to me due to bleeding, plus it puts you at greater risk for needing an emergency c-section, which would again result in me likely being put under. Nope! I didn’t want to risk any of it so I started practicing hypnobirthing. I had my essential oils picked out, I had my music prepared and had been going through all the prompts with my mother as she was going to be my coach though it. She is my calm, which, duh? Of course she is, she’s my mom!

My team of high-risk OB’s couldn’t give me a definitive answer of course, but they knew it’s what I wanted and it was listed as my birth plan from day one! At 21 weeks I started progesterone shots to help prevent preterm labor, but had to stop after 2 weeks. At this point I hadn’t been diagnosed with PMDD, so I didn’t know that those added doses of progesterone would cause me to spiral downward, fast! That was the first time (that I knew of for certain) where hormonal depression kicked my ass! I mean, I figured I was a mess when taking the pills for OI because it was meant to shake things up, I just didn’t realize they were a contributing factor. Nor did I realize that what I was feeling with the suppositories wasn’t just [normal] “pregnancy hormones” with the added stress of a -possible- miscarriage. Nope, as it turns out, my body doesn’t handle progesterone well. I didn’t discover until after I was diagnosed with PMDD, that natural progesterone levels are at their highest right after ovulation, which is exactly when I start struggling; <- explains a whole lot as to why any time I was on birth control, I also ended up on anti-depressants! So, not being able to take the shots meant more visits and added ultrasounds as once again, I was at a higher risk of losing the pregnancy, not just going into preterm labor. Yay me…

Around 28 weeks baby boy was thriving! He was in the 67th percentile, so it was really up in the air as to if I’d be able to have a VBAC. If he continued to stay far ahead the closer to term that I got, my chances for the natural delivery that I wanted would drop lower and lower. By 34 weeks he had dropped to the 29th percentile, which, in retrospect should have been questioned more, but they viewed him as healthy and my chances looked bright. I only knew he dropped as I started going into preterm labor and had 2 ultrasounds that week alone to monitor him. At 36 weeks with a 5+ hour trip to labor and delivery, they were convinced he was coming that night. After walking the hospital for 2 hours, things weren’t progressing enough so they sent me home, even though my contractions had been consistent for 2 weeks and powerful enough to be considered ‘active labor’ that night… until they stopped. All of a sudden, out of nowhere. <- again, in retrospect one would think there’d be a little more concern but my fluids were intact and all seemed [fine]. Cool? As I mentioned in [15. Twenty-Two] Kellan was almost born on his father -and- my father’s birthday. He was also close to being born on my mother-in-law’s. <- Thankfully he wasn’t, no offense, but if he’s not sharing the day with my husband and my father, Kb deserves his own day just for him! Which he got, when my water broke the very next morning.

When we first got to the hospital everything was progressing as it should. I got hooked up to monitors and was super stoked that the outcome of having a VBAC looked promising! Then… literally out of nowhere like the flip of a switch, nurses came barreling in. I was flipped onto all fours, given oxygen, and my doctor did a quick exam (I think?) as they were wheeling me to the operating room, before Igor or myself could even ask what was happening. Within a matter of seconds I was on the OR table and hooked up to monitors again. I just remember not getting to kiss Igor goodbye as we both had tears in our eyes, without a clue as to why the situation was so emergent. During transport my doctor mentioned that they had [-lost-] fetal heart tones for the last 10 minutes!! <- Are you fucking kidding me?! TEN MINUTES?! Isn’t the >whole< point of being hooked up to monitors in the first place, to assure things like that doesn’t happen? Who the hell wasn’t doing their job monitoring me from the nurses’ stand? 10 minutes? GTFO!

Once lying flat on the OR table and hooked up again, they allowed Igor to enter the room. Adam, one of the senior residents (I don’t know what his official year/title was at the time) sat with me and finally explained what was going on. They didn’t know for sure what happened, but at that time I was stable and baby boy was stable. They weren’t sure if he had moved and went into distress or if I unknowingly moved the monitor not realizing. Whatever the case, it shouldn’t have taken 10 minutes to notice!!! Arg. Anyway, after about 45 minutes of monitoring us he felt comfortable enough to let -me- make the decision on whether or not I wanted to have an elective c-section or return to my room and continue with my original birth plan.

See, what makes or breaks a good doctor is truly their bedside manor. You can be brilliant but if you’re a jerk, your ego will get in the way eventually and it wouldn’t be surprising if you face a lawsuit or two+. Adam listened to me. I explained my previous birth trauma and how important certain things were to me. Like delayed cord cutting, Igor actually being able to cut the cord, skin to skin immediately after birth and most importantly – to be awake and hear his first cry!! He knew how badly I wanted to try laboring naturally and allowed me the [choice] without any pressure (How it should be!). He asked if I wanted to speak with an anesthesiologist first to hear my options shall the need for an emergency cesarean arise. He stood next to me holding my hand while I cried unsure of what to do. Ultimately being awake was [the] most -important- thing so we all agreed that while I wasn’t getting an epidural, pre-placing a catheter in the event I needed to be rushed down again, would give me the best odds at not being put under, as they could pump what was needed during transport. 

They had Igor step out as they placed and tested the catheter for proper placement. They told him it would only be a few minutes so he could go back to my room and wait for me to come back. Only… things didn’t go as planned… AT ALL! Again, within a matter of seconds I was back on my back as they prepared to get Kb out of me as quickly as possible. When they tested the placement his heart rate went from 187 to 58 almost instantly. Adam had previously addressed how important it was for me to be awake with all of those involved, so the nurse anesthetist told me that they’re doing everything they can, but to understand that in order to stay awake they needed to overdose me to work as quickly as possible. Pretty sure all I did was blink and I went from having fluid dripping into my spine to, “Jena can you feel that?” “Prepare for the baby to be out in 90 seconds.” I remember yelling, “Wait, what?! Where’s my husband? My husband has to be here; he can’t miss this! Where is my husband?” as tears streamed down my face. Everything happened so fast that Igor entered the operating room {JUST} as they were pulling Kellan out of me. Igor thought fast on his feet and grabbed his camera when whoever went to get him and started taking pictures as the OR doors opened. The first thing he saw was baby boy literally halfway out of me! ::phew:: He just kept snapping, I don’t even know if he was looking through the viewfinder or just holding it while he pressed the button but he at least got to see it… kind of.

Unfortunately delayed cord cutting wasn’t an option, however Adam made sure to leave it long enough to get [some] benefit as well as allowing Igor to “cut the cord”. My sweet baby came out blue; I of course didn’t know this at the time but it sure seemed like it took forever to hear his first little high pitched cry! He was whisked away to be checked over and then brought over to me and placed on my chest right there in the OR for immediate skin to skin! I am not sure how normal that is, as I’ve only ever seen photos of proud dads holding a wrapped baby next to Mama’s head. The problem is, I was legitimately numb to my neck and he kept rooting upwards towards my shoulders. They weren’t kidding when they said they needed to overdose me. The nurse had to keep adjusting him until he finally found what he wanted and started nursing.::awwmybebe:: And nursing did he ever! Pretty sure I made cream as he was already above birth weight at his first doctor’s appointment. They typically say by 2 weeks babies should have reached their birth weight as they lose weight while in the hospital. He weighed 5lbs 15oz at birth, left the hospital at 5lbs 7oz and was 6lbs 2oz by 5 days old!! ::whaaat?!::

Remember when I said he had dropped from the 67th percentile at 28 weeks to the 29th at 34 weeks? At 38w5d he was born barely making the 2nd percentile. Later that night after walking the halls, I returned to my room to find the MFM attending doctor waiting for me. He explained that had I attempted natural laboring, both myself and Kellan may not have made it. If you recall in [06. HS/Diagnosis] I explained how EDS affects the organs, as it’s a connective tissue defect. As it turns out, all of the complications and near miscarriages were a result of a faulty placenta. I was never actually told what exactly was faulty about it but that he was malnourished towards the end of my pregnancy. He was healthy, but it makes sense why he ate around the clock for a while. My uterus was so thin along my previous cesarean scar that it basically ruptured on its own as surgery was being performed. <- Whoa! That explains why the OR looked like a crime scene in the pictures… ::ShiftsEyesSidetoSide:: I was in a controlled environment and they were prepared, whereas if I tried laboring, there is no question that I would have hemorrhaged and it would have been that much more serious. Obviously doctors cannot [tell] you what you can and cannot do, but he made it -very- clear that getting pregnant again would put my life even more at risk. He told me that if I was his daughter he’d tell me, “it’s not worth it and to not get pregnant again!” Roger that!

Adam, or rather now, Dr. Baruch, clinical assistant professor, will >always< hold a special place in my heart!! I know I didn’t go into detail over just how much he was there for me but I will never forget him! He even came to check on me after his shift had ended and he heard what the attending had to say. I am not the person to walk up to someone off the street and say something, however, about 18 months later I apparently became that person. Ha. Igor and I were in downtown Ann Arbor and saw Adam in a store. I was so SO nervous and hesitant but I -knew- that I [had] to say something; I not only literally survived because of him, but I also survived a very traumatic experience without the mental trauma effects. I have tears in my eyes just thinking about his sincerity and how lucky future mamas will be, to be under his care! Also, you know you’re getting older when the doctor who performs surgery is younger than you. Oy.

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Twice Exceptional

“If you have an argumentative or defiant child be proud that they: are practising skills for becoming a confident leader; feel safe enough to express their views; often have advanced reasoning and logic skills; and are passionate about their points of view.” 
– Dr. Lucy Russell

Twice Exceptional, or 2E, is a term used to describe gifted children with the potential for high achievement, while also dealing with neurodivergent disabilities. Some of these disabilities may include specific learning disabilities (SpLD), speech and language disorders, emotional/behavioral disorders, physical disabilities, autism spectrum, or other impairments such as attention deficit hyperactivity disorder (ADHD)”

Both of my kids are considered 2E. They are both gifted but have different “disabilities”. <- I use quotes there because for some reason calling these “disabilities” makes my skin crawl! Leighton lightly falls on the ASD spectrum, has extreme ADHD with behavioral outbursts and severe anxiety. Where as Kellan has dealt with severe speech articulation/phonological process disorders. I myself am 2E but you know, like I was told in school, “Your IQ level is too high. It may be hard for you but you’ve learned a way to overcompensate and make it work.” [07. Ode to my Mentors] In the link above it even mentions that “giftedness is often overshadowed by disabilities, or these students may be able to mask or hide their learning deficits by using their talents to compensate.” – Yup, that was me. And the struggle was real!

I am SO thankful that we have the pediatrician that we do, as well as are in the school district that we are. SO far – they have done a great job meeting the kids’ needs! Kb has an actual iep from early intervention but we haven’t needed to set one up for Leighton, yet. I’m sure the day will come, esp. with middle school around the corner and all the added stressers that brings. He will be 9 when he starts 5th grade, is currently supposed to ride the middle school bus to 6th for math before being bussed back to elementary – but he’s taking a placement test and may end up in 7th grade for math insead. My 9 year old in a classroom of 12-13 year olds? Idfk about that!!

Having a gifted child has its challenges. As does having a neurodivergent child. Add the two of them together? I don’t think anyone could understand unless they themselves have experienced it. And even then, each child is different but there is definitely a deeper level of understanding among 2E parents. I didn’t realize how much more difficult it was until I met another 2E parent! I am SO [thankful] for her and luckily our boys are the same age! Unfortunately they are in a different school district and haven’t been as fortunate with accommodations. 🙁 BUT! Michigan is a ‘school of choice’ state and luckily for her son, he’ll be attending a different school next year where he’ll hopefully get the chance to thrive! ::fingerscrossed:: I honestly can’t wait to hear how it goes because it’s not only for gifted children, it’s a public school and therefore – FREE!! We have looked into private schools for Leighton, but figure elementary school is more for his -social- needs and we’ll see how the district does in middle school. We just can’t see paying tens of thousands of dollars for elementary school. Hell, I don’t know how we’ll do it, shall he need it at all, especially if they both do! It’s ridiculous how much getting an education costs, and don’t even get me started on college…

Leighton has been nothing but go, go, go since before he was born! He has always had his own timeline, it just so happens to be way beyond his years – an [old soul] as they say. He came out screaming and never stopped. Kidding, kind of. ::notkidding:: My pregnancy with him was hell! I was nearly bedridden the whole time. At 6 months I was hospitalized for a week due to my kidneys being taken over by stones; literally – doc said he’d never seen it so bad and it took me the next 3 years to pass them all. (Ha, just like my gallbladder. By the time I had emergency surgery to remove it, it was only working at 1%; usually they try to remove them if they’re only working around 25%! The surgeon took pictures because he had never seen anything like it. Yay me! ::MoreLikeWhyMe::) When I was 33 weeks pregnant my resting heart rate, while lying down, was in the 160s! That alone was hell! Luckily I didn’t have to suffer too much longer as Leighton decided he was done waiting to be born. At 35 weeks, 5 days he made his debut at 6lbs 11oz & 19.5in.

I had a really hard time adjusting as a new mom, as Leighton never slept more than 15 minute increments during the newborn stage. I also had a c-section and wasn’t cleared to do the stairs regularly until 12 weeks, so I either slept on the couch or a blow up mattress. He was hospitalized at 4 months due to RSV and his lungs have since been compromised and prone to developing pneumonia easily. He had such severe reflux (as well as a severe gag reflex) that he basically lived in a bib for the first year and a burp cloth became a permanent fixture upon my shoulder. Two different gastroenterologists suggested Eosinophilic Esophagitis (EE), which is an allergic condition that happens in the esophagus; the esophagus becomes inflamed and does not contract properly. It can get narrowed and develop rings or abscesses. [Sidetrack: I find irony in the two E’s] He was diagnosed as failure to thrive twice but after getting scoped even his GI doc was surprised that he did not show signs of EE!! Due to his gag reflex and top lip tie he couldn’t latch well for breastfeeding, so I exclusively pumped for 4 month and used special bottles that mimicked the breast, in hopes that he’d be able to latch one day. Which he did around 4 months and I nursed him for 15.5 months! Around a year old he wasn’t handling table food and ended up in OT for eating. Turns out his tongue was underdeveloped. At 12 months he experienced his first involuntary “breath holding spell”. A month later he experienced another but it was unlike any other he’d experience going forward. Let me tell you, having to give your own child CPR to then witness a seizure is without question one of the scariest moments you’ll ever encounter!

Involuntary breath holding spells are apparently a common phenomenon. Except, Leighton always has to go above and beyond and happened to be the worst case his pediatrician has ever encountered, as well as the neurologist’s. [Yes, we are that -(un)fortunate- to have such terrible luck, and no, I am not exaggerating when I tell you something was the “worst” according to our doctors.] There are usually tips and tricks you can do to get your child to breathe again, such as: blowing in their face/mouth, spritzing them with water, a loud toy (squeaky) noise – kind of like a shock to bring them out of it. Leighton however, never came to before passing out. Once he was going into a spell, literally nothing worked until he [came to] after losing consciousness. Kellan had his first episode when he was 3 months and let me tell you, his spells were so much worse than Leighton’s {in the moment}, however, I can count on my hands the number of times it happened to Kb. Leighton? Leighton was having episodes upwards of 10x a day+!

Any 2E parent knows how explosive their child’s behavior can get. The kid knows what they want but are too young to emotionally regulate logic. Leighton knew his alphabet, [both] upper and lower cases, by 18 months old. I don’t share that as a brag, I share that to give you an understanding of how mentally a head he was, while still barely being a toddler. Emotional development is still something he’s working on at 9 1/2; and it’s exhausting to say the least! So, we had to give in to him and try our best to not upset him, because he could flip like a switch and end up turning blue and passing out. It was terrifying to experience but after a while it became so normal that I didn’t even fret or try to prevent it. No use stressing over it knowing there really wasn’t anything I could do.

The neurologist discovered that his brain ferritin iron levels were low. He had to have special iron panel tests monthly because normal blood work showed normal levels. Yeah – getting a toddler’s blood drawn monthly is as wonderful of an experience as you’d imagine… ::SideEyesofSarcasm:: Treatment? Straight up liquid iron twice a day. Bleh, I legit gag just thinking back to those days! I really wish I would have written down some of the recipes because, I made some bomb smoothies back then to mask the flavor and get his nutrients in!! That was the -only- way I could get the iron into him, twice a day, and even then it took a while to find what really worked to hide that horrifying taste!! We went from 10+ times a day for a few months, to maybe 10 times a month for about the next 9 months. As he got older they slowed and his last one happened when he was about 3 ½ . Only then he replaced passing out with throwing up. His outbursts mimicked The Exorcist, each and every time, until he was about 7. There was no reasoning with him, he’d get so fixated that we couldn’t talk to him. There were times it truly felt that our child was possessed, it was so bad! We don’t believe in physical punishment but there were times it was [hard] to control the desire to just shut him up!

JUST as covid shut everything down, he was supposed to start therapy. Then no one would do virtual visits with him alone because he was only 7. It took a LONG time to finally find someone, and that was only after I was in contact with the school’s social worker a -few- times, practically begging. She finally made it possible because she personally felt that, [and I quote from her email] “a more intensive intervention may be more beneficial for him” instead of her doing Zoom calls with him. Uhm, I am aware he needed “more intensive intervention” but no one would take him on. That’s why I turned to the school’s social worker… for her to just say, {yeah, no.} We may have gotten him in but she could only see him every other week. Once in 14 day was not nearly enough. How can he learn proper coping skills from a professional if said skills couldn’t be reinforced regularly? Trust me lady, I’ve tried and suggested it all. When you’re dealing with a 2E child, with his level of ADHD and Anxiety, we as parent’s need help, too! She did give me a compliment that I have been doing everything right so that was reassuring but, man. It got to the point it felt like we were wasting time and money because she never got to see the [true] Leighton until the very -last- visit! He is so good at masking himself in public, which is that much more frustrating. I understand that this is his home, his safe space, but for us to be constantly met with the behavior we were, the “I don’t knows” and “I can’ts” for every excuse, we were at a total loss.

I -know- how hard it is for him living the way that he is. He hates it! He’s made remarks that he doesn’t “want to live like this.” And while I certainly don’t blame him, as a parent, that’s a very real, very scary thing to hear!! Igor and I have always been concerned about his mental health, especially as he gets older, which is again why we tried getting him help early. The kid would piss himself without giving any fks and would stay in his clothes. He legitimately didn’t care. He also never takes responsibility for himself, everything is always someone else’s fault. He even disassociates his brian/body from himself. “It wasn’t his fault, it’s his brain’s fault.” ::jiminyFreakingcrickets:: She obviously couldn’t tell us what they discussed, but she was very serious in that he [knows] what he’s doing! She didn’t believe that he really needed therapy at that point because until he is willing to listen, and {want} to change the way things are, there is no point. He is so black and white that if you say the -wrong- thing, he no longer listens to what you’re saying until he can correct you, and then claims he was never told xyz. She doesn’t believe that he wants things to be different bad enough, otherwise he’d be making the effort. Of course she wasn’t trying to tell us how to parent, but that he is [stable/safe?] enough for us to start “cracking the whip”, figuratively speaking.

So yeah, one of the fun things we learned about 2E children is that they are – MaSteR- >manipulators<!! Don’t get me wrong, they still struggle which is why he is medicated. BUT! They understand their conditions enough to know how to use them to their advantage. And let me tell ya, it’s been a fucking exhausting 9 ½ years!!!

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16. Year One

“The eyes of love have 20/20 vision when focused on another, and become entirely blind when focused on ourselves.”
– Author: Craig D. Lounsbrough

“And from that day on, they lived happily ever after. <3
– The end.” [14. Forever & Always] Taylor Swift wasn’t wrong when she sang, “this ain’t a fairytale” because life simply isn’t as easy as that!

Coming from the Jewish-Russian background there is some truth behind the stereotype of a “Jewish mother’s guilt.” And does Igor know it all too well. Thankfully mine isn’t too bad but there were definitely times that she laid the guilt down heavily. I try my best not to make my kids feel that way because they are their own people, I respect their boundaries as human beings and do not believe in dictatorship. Now, that doesn’t mean I am a “free range” parent because I definitely am not, there are rules to be followed, but I respect my children’s feelings and honor their autonomy for who they are. Here’s a quick example: my children are both biologically male and identify as so. My oldest decided when he was 5 that he wanted to grow his hair out, but felt pressured by society to cut it as “boy’s don’t have long hair” according to my in-laws [especially..] So he cut it, and instantly regretted it because he no longer felt like himself. After a few more hair cuts he realized that he didn’t care what people thought, he wanted his hair long (at first it was because Mom had long hair- you know that whole “young-child Freudian theory”, but as it grew he felt more and more himself.) He was and still is often referred to as a girl by strangers because he really is pretty and his long hair is gorgeous! At first it really bothered him, he didn’t understand why others just -assumed- he was a girl; it became the perfect time to open discussions about gender, society, and “old world” thinking. How some people won’t understand, respect or agree with his decision and he may get made fun of for it.  After a while, he just stopped caring! We have always tried to instill that in life, you need to do what makes >you< happy, even though others may not agree or like it. It’s NOT easy to do, especially when people you care about don’t agree, and that kids at school (& people in general) can be mean. If you make a decision that causes you to stand out, you need to accept there may be backlash and that you need to be strong enough to not let it change who you are. If it makes you uncomfortable we’ll work through it and come up with a solution, but that being who you are is important, is validated, is okay! As long as you are happy and not causing any harm – {nothing} could or would ever make us feel differently towards him!!!

This whole situation has made him so strong in not caring that he stands out. At school he is one of the only ones in his class still wearing a mask and using a plastic divider at his desk. His response to being different? “I’m the boy with long hair, I’m used to being the only one that is different.” <- Oh my heart sweet child! I could not have been more proud in that moment as a mother! See, the thing is, he has always been different and stood out because of his giftedness, and the fact he -knew- his brain worked differently broke my heart because he saw it as a flaw. Thankfully now he embraces it and isn’t afraid to humbly-brag. Oxymoron? Eh, whatevs. He is who he is and while it isn’t easy at times, I couldn’t be prouder for who he is becoming!

Before I came into Igor’s life he didn’t know how to stand up for himself against his parents. He never wanted to disrespect them, but he realized that being able to voice your own feelings and opinions, especially as an adult, is not only okay, it’s crucial to your own life’s happiness! His family doesn’t see it that way. He is their child so he should do as they say. Much like how they feel we are Leighton’s parents so we are the ones who decide how his hair will be. He is young and shouldn’t be able to make choices like that for himself… F THAT! I would -never- expect Igor to disrespect his parents, but simply speaking up to them, against what they say, even when done nicely, is disrespect in their eyes. I mean, they moved to America to give their children a better life, it shouldn’t be a surprise when they grow up “American” with American Xennial views. Oh man, I have so much to say but I’ll leave that for another post(s)… or try to at least, haha.

As I said in [14. Forever & Always] I was honest about my health from day one, even though he may not have understood the extent of it. I do not have Fibromyalgia, but it is a term he was kind of familiar with so I used it as a way of explaining my pain from EDS [06. HS/Diagnosis]. His older brother (and roommate at the time) overheard and went straight to his parents. He may have been older but maturity wasn’t there yet; he still told his parents everything. Looks as though Igor wasn’t the only one to feel he wasn’t allowed to have his own life. It actually took until meeting his own wife to also grow a “backbone”, per say. That led to a shitstorm thrown into Igor’s lap about how I was basically “defective”. That he shouldn’t want to be with someone [sick] because it’ll ruin his whole life, who knew what would be passed down to >his< children, etc. To them it’s all about how {they’re} perceived by -others-! My mom made a comment once about how if we wanted a third child we could always adopt; I wish I had my MIL’s reaction on film – you’d have thought my mother spoke of witchcraft back in the 1690s. The disgust, the horror, the shame, the shock. The spoken, “Oh, no. No, no, no.” as if just saying the word “adoption” was taboo enough. ::rollseyes::

Anyway, with Igor having never been in a real relationship prior me, everything his parents said got to him. He was confused and wondered, what if they were right? He didn’t know any better because again, at this point in time he was still very much under their thumb. Which – led to us breaking up… after 2 months of being together 2-3x a week and talking daily for 3 months. I was so thrown off I didn’t even know what to think. It literally came out of nowhere!

But as time went on I realized it was more like when Kev and I used to “break up” [09. First Love]. We still hung out fairly regularly and talked daily. We were each other’s “besties” and neither of us were pursuing anyone else. Annnnd ultimately still hooking up (though not at first). I think the second time we hung out post “break up”, we had gone to the zoo (the first being like a half hour visit because I needed to get him his 25th birthday present I had already bought). The zoo was part of his Jdate profile questionnaire [14. Forever & Always] regarding an ideal first date, a date that never happened while we were [together.] This was probably 3 weeks after the “break up” and it was genuinely a great day! At the end of the evening, my heart burst with jOy when Igor –asked– if he could >:kiss:< me! How stinkin’ adorable is that? I mean 10/10 in terms of respect but also, awe!!<3 I wanted nothing to do with this break up and he knew where I stood. So, in my heart, I felt that maybe this was him reconsidering his choice… but no. He just missed me and was even more confused than ever because, how could something that’s not [supposed] to be, feel so {wrong} not being so? He had never been happier in life before I came into the picture; I was the first person to open his eyes to a whole different world and the thought of me not being a part of his life just didn’t make sense!

However, towards the end of summer I noticed some new female friends commenting on his Myspace that were questionable for someone claiming they weren’t [looking to date anyone]. I sort of felt defeated, not going to lie. I [knew] we weren’t together but it was -just- like it was when Kevin and I were “off” but {not off}. Was I destined to a life of on-again/off-again relationships? Was I subconsciously allowing myself to be used (per say) thinking it was keeping them close? Why did I keep putting myself in these situations?!? Oh yea ..>< Love ><.. Only, it was different with Igor! If you were to ask me who I loved more, it would honestly be a complicated answer. My love for the both of them was/is so different that they’re simply not comparable!! With Kev it was the butterflies, childhood memories, teenage hormones and the {“firsts”}, but with Igor it was as if my whole being felt such a deep rooted connection, a calmness and -completion-. My heart and soul just felt complete with him near.

At the end of August I headed out to Seattle for nearly 2 weeks to see my long lost bestie, Tiffany. [11. Childhood Friendships+] I fell \ IN LOVE / with the city and truly considered moving there! A fresh start. I purposefully made it a point to talk to Igor as little as possible: out of sight – out of mind. Simply enjoy my time with someone I hadn’t seen in 5 years. If we talked it was because he texted me. I did send him a postcard because, well, I may have been hurting because of him but he was still my best friend and the one picking me up at the airport when I returned. However, while in Seattle someone else started texting me again and wanted to get together when I returned. I’ll give ya one guess since it’s not like my love life wasn’t already complicated enough or anything. ::faceMeetpalm:: 

After getting my bags I was met with the biggest bear hug, kiss and a gift. I guess a coworker was making candles and he asked if he could get one for me. Dang this rollercoaster of a thing called, <life> sure has its twists and turns. That candle by the way was never used and currently sits on display in our main bathroom. What can I say, I’m a simple sentimental kind of gal. And by simple there really isn’t anything simple about me in retrospect, but at the same time… yeah, yeah I am! ::shrugs::

Over the next couple months things were status quo between us, though we both were keeping some things to ourselves, which neither of us found out until a while later. I don’t remember where in the exact timeline he started, but he started playing soccer Friday evenings with a co-worker in Ann Arbor. With Ann Arbor being closer to me than him, he often just stayed the night at my place afterwards. I went to some games and his co-worker’s girlfriend just couldn’t understand why we weren’t together. Honey, same? He went on a business trip to Chicago and when he returned he came right to my house with yet another gift. Huh, if you’ve read my [Husband Appreciation] post you’d know he’s not a gift giver, and yet, now I’ve received 2 in maybe 2 months? This is what we call -deception- my friends. Haha. Joking, kind of. But really, I find humor in this now reliving it because that wasn’t the last gift I’d receive while still “broken up” – in fact there were 2 more in December alone! ::HandsToCheeksShockedFace::

I come from a very musical family and love musicals. My grandfather used to take me up to Stratford, Canada to see them growing up. Stratford is known for their Festival of modern and Shakespearean plays in multiple theaters. It was also tradition that he sang, “Sunrise, Sunset” from Fiddler on the Roof at family weddings; I am so, SO grateful that he was able to at mine!! What an honor to bear witness, what became his last [true] performance! All of that said, one of my favorite live shows is }Wicked{ and I had seen it once before. Mom had gotten me tickets for graduation; so Jessie and I went since it was Jessie who introduced me to Wicked to begin with. [11. Childhood Friendships+] Wicked was coming to town and Igor got us tickets! What?! He even made plans with his best friend to get tickets for him and his girlfriend, too. It was the first time I had met either of them. Yup, 9 months and I hadn’t even met his best friend. Also, not awkward at all to have his girlfriend, whom Igor had only met briefly once before because the relationship was still new, pick me up so I could wait with her until the guys came after work. Nope, not awkward at all… <- Honestly? I don’t know how I did it! But she was so friendly and outgoing, she talked as if we’d been friends forever. That’s just the kind of person she is, though, we really did end up becoming friends and they even ended up getting married one month before Igor and I.

For those who are unfamiliar with the show, one of the most popular (punny because there is a song Popular) known songs is, >For Good<. If you haven’t heard it you must, here; you’re welcome! Here are just a few of the lyrics but the main point of the song:
“Who can say if I’ve been changed for the better?
I do believe I have been changed for the better
And because I knew you
Because I knew you
I have been changed
For good”

So good, right? I get chills just thinking of Idina Menzel and Kristin Chenoweth singing it! With Marion being my [10. Twin Flame] this song always resonated with the two of us, still does. I think of both her and Igor anytime I hear it, must be because they’re my two counterparts! Anyway, during the show, during that song, Igor grabbed my hand, held it tightly and tried his best not to let the tears in his eyes fall down his cheeks. I was unaware at the time, but apparently he bought a necklace from the souvenir stand, and said necklace was given to me for Christmas! There went my heart flip-flopping again! Guys… see what I mean when I jokingly call his actions deception? Like, how does one NOT take that as a good sign?!?! We spent New Years together and it was honestly one of the best evenings together since the “break up” that it/I legitimately felt like we were getting back together… [officially].

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Exhausted.

When you’re tired of, well… everything and you’re stuck in limbo, it’s really difficult staying motivated to be productive. So much planning, so many ducks needing to be lined up exactly in the perfect row, so much packing, so many unanswered questions, so many decisions needing to be made… like I don’t mind doing the above, it’s trying to care to do everything else that’s the problem.

I hate clutter, it drives me crazy, overstimulates and triggers my anxiety. I become paralyzed from being overwhelmed due to my ADHD. <- Is it still considered hyperactive as an adult when you certainly don’t have the energy to even think about being hyper? The problem is, no one else seems to be bothered by any of it. So unless I am on top of keeping everything organized and put away, it sits. Until I do it.

I’m exhausted.

I get it, my husband works all day and he shouldn’t be in charge of everything else, too. We’re supposed to be a partnership, but when I’m sick – he’s on single dad duty and I >know< how much more that adds to his plate. It’s not fair to him, I agree! And he does help out keeping on top of the dishes, garbage and our cat’s litter box on his own, but maybe picking up a dish or cup off the kitchen table when they’re not in use wouldn’t be so bad? Again, I get it, he has so much on his mind for work, bills, trying to maintain my love language’s bucket, etc. that his brain is preoccupied. I get it. I do! But is it really that hard to walk your soda can over to recycling instead of leaving it anywhere else? Or leaving their socks right where they take them off? (Ha. I know most wives feel me on this one! Husband’s too, I’m not excluding any significant others; I just tend to hear more about it from wives. ;-p) And NO, this isn’t a passive aggressive way of harping on him, these are examples of conversations previously had. It should also be noted that while we are a partnership, he is hardwired from generations of “women take care of the household and children” coming from a Russian culture. He absolutely believes it should be a partnership but I am the one home, so when I’m not sick it should be more on me. Again, I agree!!!

Though it doesn’t change the fact: I’m exhausted.

Then there’s the kids who, well anyone who’s had children or been around them for any amount of time, understands how they’re mini tornados that don’t care what they leave in their wake. Kid’s are the worst when it comes to all things clutter. I mean, my oldest has admitted he doesn’t like cleaning his room (what child does?, besides my Lori-Lou [02. & 11.]) as he too has extreme ADHD, so the overwhelming thoughts of where to begin, I understand. However, there is also legitimate truth behind his thriving in the organized chaos he creates.

Just looking into his room, I’m exhausted.

It’s been 2 years of ciaos due to the pandemic and the battles between masks and vaccines. The weather cannot make up its mind so the constant switching of barometric pressure causes any dysautonomiac [06.HS/Diagnosis] their own personal hell! It’s hard enough just to get out of bed some days. Going through hormonal changes in your thirties, more unanswered health questions for why I’ve gained 25lbs in the past year. And now Russia is initiating what could very likely result in World War 3?

I’m exhausted.

Why bother organizing and putting everything away when you are just going to be demolishing their homes, at an unanswered time? Planning a kitchen remodel/new flooring is exhausting, but I enjoy it. I’m just struggling to find the motivation to clean up the clutter when I know my house will be -organized chaos- in hopefully >fingerscrossed:knocksonwood< short order. But with the pandemic and what Russia has just done to Ukraine, all uncertainties are even higher up in the air. Looking around and seeing all the… stuff, not only overstimulates and triggers my anxiety and overwhelms me to the point of paralyzation, it exhausts me.

I. Am. Exhausted.