“Time is a created thing. To say ‘I don’t have time,’ is to say, ‘I don’t want to.’” — Lao Tzu
You know that feeling when someone reaches out to you that you haven’t spoken to in years? Especially when that someone was somebody really important in your life at one point in time. It makes you realize how many lives one can live within a single lifetime! The saying is that ‘life is short’ but in the moment it sure doesn’t feel like it. Counting the years add up quickly and it’s incredible how something can seem so familiar yet a distant memory at the same time. How accessing memories from the past can make you feel as though you’re right back there, living it all over again in real time. I’ve often joked that it’s a blessing and a curse to be able to recount and recall all that I do. Remembering certain dates, both good and bad. Wishing that it were easier for you to forget certain things, only to one day realize that a day came and went and you didn’t even think about its significance, once. Time is nothing but a relative term. My boss believes that it’s our most finite resource, and she’s not wrong, but it’s also just a relative concept, is it not? I don’t mean to get all philosophical on ya but seriously. Have you ever thought about it?
It has been 11 months since my last entry and I find that just as hard to believe as the fact I am approaching the 2 year mark of employment with The Sisters Enchanted! Wanna know something crazy? I don’t remember my exact start date nor end date with Borders – but I know that it was just around this time mark; making TSE the LONGEST consecutive job I have ever held! WHAT?! Well, except motherhood, of course. Wild.
So what the hell has been going on for the last year? F if I know. Ha, ha! I mean, work was crazy busy the second half of 2023 and a good chunk into 2024. But sitting here reflecting I realize that as 2023 came to an end I was thrown POTS flair and battled extreme fatigue and all that comes with medication dysregulation. Not to mention that I had developed some new symptoms that we’re still trying to get sorted out. Instead of just passing out upon positional changes, I started passing out just arching or twisting my back ever so slightly. And having costochondritis with slipping ribs movement to simply breath is kind of necessary. I could literally be lying in bed stretching and the lights would go out. I could be working and if someone walked into my office, if I turned to look at them just right, down I went. We have absolutely no idea what could be the reasoning behind this new cause for syncope, but I am meeting with a new local Electrophysiologist later this month so we’ll see what he has to say. The only thing that has come up between my most recent echocardiogram and holter monitor is some regurgitation from both my Mitral and Tricuspid valves. So, I guess it’s fair to say I’ve just been exhausted and finding time, let alone motivation to write, just hasn’t been there.
However, the writing bug has bitten me recently so here I am, with an update.
You ready?…
>> I have decided to turn my writing into a book after all! <<
::Cue digital confetti::
I am not entirely sure when I decided to turn it into a book and obviously it’s going to take quite a while but slowly it’s getting there. I have already taken most of my entries and converted them and as I write more I will update the blog. There is still so much to say but instead of writing up something new when the inspiration fired, I got a head start on prepping the book. Do I think anything will come out of the book? No, not really; I know that I’ll have a few sales as it’ll likely be self published but the point is the follow through. Even if it is self published, I can still call myself a published author whenever that day comes. A goal I set out years ago and one I [WILL] see to the end! ::bowsdown::
SO – what else has been going on? Well, as I piece together and edit what I have for the book, I was reminded of something else that has triggered significant mental fatigue over the last year that has likely added to my lack of motivation to write. That being Leighton’s hormones triggering more psychological episodes and the fight to try and get him help! There are times where he is literally begging for help. He needs a psychiatrist but I cannot get anyone to call me back. No one responds to my emails and even with a primary care doctor trying to assist in my efforts… nothing! It’s maddening! Ever since Covid, finding mental health help has been nothing but a sick joke! Those comments about “not wanting to live” have turned into very real concerns about self harm. His doctor has warned him that he needs to choose his words wisely because we are obligated to take him to the hospital if he continues to say some of the things he says. I think that scared him enough because he is definitely making an effort to try to communicate better, but he himself is still scared that when he’s in a fit, and not thinking, that he will do something dangerous, not being able to logically think about the repercussions. He is concerned about harming himself because of how dark his mind gets. I am just so thankful that the lines of communication are still open and something he has found that helps is sketching out his feelings. Instead of writing a journal, which he did start and really appreciated being able to write whatever he wanted without fear of judgment or punishment, he draws symbols and whatnot to express what is going on for him. Can I decipher even half of it? Not at all, but I’m willing to listen if he wants to explain. There was one day while writing that you could see the whole process from his irrational thoughts, to working his way through them and then realizing where he was in the wrong, what could have been done differently and why he thinks things ended up the way that they did. Proud Mama doesn’t even begin to define how I felt when he shared that entry with me; even if there was an entire paragraph of seeming just F-bombs.
Parenting is hard. So hard. On one hand we know he is very good at manipulation but the alternative of not taking his words seriously is not something I’m willing to play Russian roulette with. So alas, we’re back to trying our damndest not to upset him but boy do hormones take their toll!
And Kellan? Kel has just been an a-hole. He argues over everything. Complains over everything! Igor says that school ruined him and while I tend to agree, we can’t forget he’s always been my little neanderthal and a total stinker.
In April I had to head back to the East coast for work and since I can’t travel alone, we decided to make it a family affair. It was the boys’ first time flying and they did really well! AND I didn’t pass out during either descent!! I found these new ear plugs that help with regulating air pressure and they were a literal game changer! Not only did I not pass out, I was also not curled over in the fetal position crying from pain. I have never been able to fly, ever, without my ears bringing me to tears! I have so much scar tissue in my eardrums that they can’t handle the pressure changes. I really wonder if I didn’t pass out because I wasn’t in pain, but also because my ear pressure was regulated? If that’s the case, then ya girl may be able to start traveling ALONE again! Oh wouldn’t that be the dream?! However, now that I know I can request a wheelchair both ways, that’s a game changer too! Who knows, maybe next year I won’t need Igor to assist me on my work trip!
Last year for work we went to Mystic, Connecticut and this year Salem, Mass! Witches loose in Salem, oh what fun! I had to work Mon-Wed so Igor, the boys and I flew out on a Thursday to get some family vacation time in. You’d think we’d have learned by now that a family vacation is not a vacation, but rather a family trip. There is nothing “vacation like” about traveling with kids. Leighton was a dream almost the entire time, a shock and blessing twisted together. Kellan? Total a-hole. Ha. He whined and complained the entire time, nothing was good enough even if he got what he wanted. It was really difficult for me but I especially felt for Igor as he was stuck with the kids without me Mon-Wed. Friday we explored downtown Boston and oh my heart was I in love. Leighton is my sensitive buddy, he always wants to be with me when he’s exploring new places as my “energy calms him”. I didn’t realize how much that means to me until we were in Boston and he chose his dad! Rude, right? My heart has always been drawn to New England and he said that my energy was too comfortable there, like I was meant to be there or was in a previous life; so he was with Dad because it’s like they were experiencing it together. Okay, maybe not rude – that is rather sweet. He even held his hand walking down the street! ::dawww::
I thought Seattle was my favorite big City but Boston is a true contender! There’s nothing quite like standing IN PAUL REVERE’s house and realizing that it’s THE anniversary of the start of the revolutionary war!! It was the coolest and craziest thing to experience. We walked all of Freedom Trail (& yes, John Hancock’s gravestone is phallic & no, the irony is not lost). L had his favorite donut, Boston Cream – in Boston and he stunned a group of college kids over his awareness and understanding of climate change. He was given an Eco-Warrior pin and his response after walking away: “that was so fun!” Ha, ha. We also had Regina’s World Famous Pizza and explored the U.S.S. Constitution. Aside from Kellan complaining alllll day and me passing out twice on the subway (& having to sit on the floor, partly blocking a door, because no one would give up their seat) it was a fantastic day!!
Day 3 we explored Salem. Day 4 we drove to New Hampshire & Maine (Leighton has officially made it to 13 states and Kellan, 9!) and visited Fort McCleary; then headed back to Salem for an adventure at World of Wizardry with my boss and her family – the kids became instant friends – before heading to Team TSE’s rental house in Manchester by The Sea. It was a super old, creepy home with a lot of energy! By bedtime Leighton was so uncomfortable he ended up getting physically sick and slept almost the entire next day… anxiety hangover’s are rough, poor kid! Igor ended up renting a hotel for him and the boys to sleep at for the remaining 4 nights and I stayed behind since I was there for work. Day 6 Team TSE had an in person event, so our husbands took the kids for a day at the park. The house’s energy made itself known more than ever that day and I myself got physically sick after exploring the basement. I have never experienced anything like it before and I’m thankful I had my black tourmaline on me! Day 7 Team TSE had an all day photoshoot; which ended in us running into the ocean while it was 50 degrees outside. And I gotta say, it’s super weird seeing my own face on the internet, out in the wild, on real ads and whatnot. I’m still unsure how to feel about it. Kellan introduced the other kids to chess and even almost beat a co-worker’s husband (a former avid player)! Day 8 we went back to Salem before heading to Marblehead for the best lobster roll of our lives! It was a jam packed, busy and eventful week! While I love that the kids finally got to meet after 2 years, taking a work trip with kids is not something I’d like to do again for a long time! Annnd of course we received our first truancy letter upon getting home for school absences, dated before this trip… cool.
Annnyway. I just had the itch to write a bit so I figured I’d give an update.